Family Support

Based in Cleveland, TN, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families through vital support and resources. Our Family Support team offers trustworthy information and comprehensive assistance right from the moment of diagnosis. We provide essential services, including parent mentoring, nutritional education, personalized meal planning, and behavior management support. Additionally, we help families navigate the complexities of applying for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our resources and join a community of support, families can use the online chapter locator or reach out via email to get involved in our Facebook Support Groups.