Family Support

Located in Shippensburg, PA, the Prader-Willi Syndrome Association (PWSA) is dedicated to uplifting individuals affected by Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a vital resource, offering essential information and comprehensive assistance at the moment of diagnosis. We provide parent mentoring, nutritional education, meal planning, and behavior management support, ensuring families have the tools they need to navigate their unique challenges. Additionally, we assist with the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can reach out through our local chapters or connect with our online Facebook Support Groups, fostering community and guidance every step of the way.