Family Support

The Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome, their families, and care providers in Indiana, PA. Our warm and knowledgeable Family Support team is here to provide accurate information and comprehensive assistance right at the time of diagnosis, ensuring families feel empowered and supported. We offer essential services such as parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families with navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our services, families are encouraged to find their local PWSA chapter through our online chapter locator or connect with us via email to join our supportive Facebook groups.