Family Support

Located in Hummelstown, PA, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families. The Family Support team at PWSA offers vital resources and compassionate guidance from the moment of diagnosis, ensuring families have access to the information and comprehensive support they need. Our program features personalized parent mentoring, nutritional education, and meal planning, alongside behavior management strategies tailored to each family's unique challenges. We also assist families with navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can reach out through our online chapter locator or connect via email to join one of our Facebook Support Groups.