Family Support

In Butler, PA, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and guidance to individuals living with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team offers a wealth of resources, including accurate information tailored to navigating the complexities following a diagnosis, personalized parent mentoring, nutritional education, and meal planning tailored for unique needs. We also provide strategies for behavior management and assistance with navigating vital processes such as Medicaid applications, insurance appeals, and Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) claims. We invite families to connect with us through our local chapter or reach out via email to join our supportive Facebook groups, ensuring no one faces this journey alone.