Family Support

Based in Stilwell, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers accurate information and a variety of resources to help families navigate the challenges following a diagnosis. We are committed to offering parent mentoring, nutritional education, and meal planning, as well as behavior management support. Additionally, we assist families with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can connect with their local PWSA chapter through our online locator, or join one of our Facebook Support Groups to benefit from peer engagement and shared experiences.