Family Support

Based in Sapulpa, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals affected by Prader-Willi syndrome, along with their families and caregivers. At PWSA, we are committed to empowering families from the moment of diagnosis by offering critical resources and guidance. Our Family Support program includes comprehensive information, parent mentoring, nutritional education, and assistance with meal planning. We also provide behavior management support and help navigate the complexities of securing Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our Family Support services, families are encouraged to reach out through our local chapter or join one of our Facebook Support Groups for ongoing connection and community support.