Family Support

The Prader-Willi Syndrome Association (PWSA) in Marlow, OK, is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to delivering accurate information, guidance, and resources at the critical moments following a diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, behavior management support, and assistance with navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. Families seeking support are encouraged to connect with their local PWSA chapter through our online chapter locator, or they can reach out via email to join our Facebook Support Groups for ongoing community engagement.