Family Support

At the Prader-Willi Syndrome Association (PWSA) in Jenks, OK, we are dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is a trusted resource, offering accurate information and comprehensive guidance during the critical moments following a diagnosis. We specialize in a range of services designed to empower families, including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist with navigating applications and appeals for essential programs such as Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can locate their local PWSA chapter online or reach out via email to join our Facebook Support Groups fostered for community connection and shared experiences.