Family Support

Located in El Reno, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a lifeline for families during the critical moments following a diagnosis, offering reliable information and a range of services tailored to meet their unique needs. These services include parent mentoring, nutritional education, and tailored meal planning, as well as behavior management support. We also assist families in navigating vital processes such as Medicaid applications, appeals for insurance coverage, and accessing Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). For those seeking assistance, we encourage reaching out to our local chapter through our online locator or connecting with us via email to join our Facebook Support Groups, ensuring that no family has to navigate this journey alone.