Family Support

Located in Blackwell, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support for individuals with Prader-Willi syndrome and their families. Our Family Support team is committed to providing accurate information and comprehensive resources from the moment of diagnosis, helping families navigate the challenges they face. We offer a range of services including parent mentoring, nutritional education, meal planning, behavior management support, and assistance with Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with us through our local chapter, and we encourage individuals to join our supportive online communities for shared experiences and guidance.