Family Support

Based in Alva, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals with Prader-Willi syndrome, along with their families and caregivers. Our compassionate Family Support team is committed to offering accurate information and comprehensive assistance right from the moment of diagnosis. We provide vital services including personalized information, parent mentoring, nutritional education, meal planning, behavioral management support, and guidance with navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. For support, families can easily connect with our local PWSA chapter through our online locator or join one of our Facebook Support Groups by reaching out via email.