Family Support

Located in Afton, OK, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team offers reliable information and personalized assistance from the moment of diagnosis, ensuring families have the resources they need. We provide a comprehensive range of services including parent mentoring, nutritional education and meal planning, behavior management strategies, and support with Medicaid applications, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Connecting with us is simple; just reach out through our local chapter via the online chapter locator or email us to join one of our supportive Facebook groups.