Family Support

Family Support, located in Utica, NY, is dedicated to empowering individuals with Prader-Willi Syndrome and their families through compassionate and comprehensive resources. Our Family Support team is committed to providing accurate information and practical assistance right from the moment of diagnosis. We offer parent mentoring, nutritional education, and meal planning, along with behavior management strategies to help navigate the unique challenges of Prader-Willi Syndrome. Additionally, we guide families through the often complex application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with our local chapter for personalized support and to join our Facebook Support Groups for ongoing community engagement.