Family Support

Located in Randolph, NJ, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to delivering accurate information and comprehensive assistance right from the moment of diagnosis. We offer a variety of resources including parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we guide families through the often complex application and appeal processes related to Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For further support, families can connect with their local PWSA chapter using our online locator or reach out via email to join one of our Facebook Support Groups, ensuring that no one faces this journey alone.