Family Support

In Millville, NJ, the Prader-Willi Syndrome Association (PWSA) dedicates itself to empowering individuals diagnosed with Prader-Willi syndrome along with their families and caregivers through essential support services. Our Family Support team offers vital resources at the crucial moment of diagnosis, providing accurate information and guidance tailored to the unique needs of each family. Our comprehensive program includes parent mentoring, nutritional education, meal planning, behavior management support, and assistance with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families seeking support to connect with their local PWSA chapter through the online chapter locator or to reach out via email to join our Facebook Support Groups, ensuring no one has to navigate this journey alone.