Family Support

Based in Hackettstown, NJ, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and comprehensive assistance from the moment of diagnosis, ensuring families are not alone in their journey. We specialize in providing resources such as parent mentoring, nutritional education, meal planning, and behavior management advice. Additionally, we guide families through application and appeal processes for critical support services, including Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking help are encouraged to reach out via our online chapter locator or through email to connect with our supportive community on Facebook.