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Family Support
Prader-Willi Syndrome Association (PWSA)
Rockingham, NC US
Rockingham, NC US
In Rockingham, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Recognizing the challenges faced at diagnosis, our Family Support team is committed to delivering accurate information and comprehensive assistance tailored to each family's needs. Our program offers various resources including parent mentoring, nutritional education with meal planning, behavior management support, and guidance during application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can access vital support through the local PWSA chapter by using our online chapter locator or by reaching out via email to connect with our supportive Facebook groups.
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