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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Newton, NC US
Family Support, based in Newton, NC, is dedicated to offering essential resources and compassionate assistance to individuals diagnosed with Prader-Willi syndrome and their families. Our team is committed to providing accurate information and extensive support during the challenging times following a diagnosis. We facilitate parent mentoring, nutritional education, and meal planning, along with behavior management resources. Additionally, we guide families through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with us through our local chapter using the online locator or reach out via email to join one of our supportive Facebook groups, ensuring no one navigates this journey alone.

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