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Family Support
Prader-Willi Syndrome Association (PWSA)
Louisburg, NC US
Louisburg, NC US
Located in Louisburg, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to offering accurate information and comprehensive assistance at the critical moment of diagnosis. Our program includes parent mentoring, nutritional education, and personalized meal planning, in addition to behavior management support. We also guide families through the application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our resources and connect with support networks, families can reach out to their local PWSA chapter through our online locator or email us to join one of our engaging Facebook Support Groups.
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