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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Graham, NC US
Located in Graham, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to guide families through the challenging moments following a diagnosis, offering accurate information and comprehensive resources tailored to their unique needs. We provide essential services including parent mentoring, nutritional education and meal planning, behavioral management support, and assistance with navigating Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can connect with their local PWSA chapter through our online chapter locator or reach out via email to join our Facebook Support Groups, fostering a community of care and understanding.

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