Family Support

Based in Warsaw, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team offers a wealth of resources, including accurate information, parent mentoring, and nutritional education to help families navigate this challenging diagnosis. We also provide behavior management support and guidance with applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to reach out to their local PWSA chapter using our online chapter locator or to connect with us through our Facebook Support Groups for ongoing assistance and community connection.