Family Support

Family Support in Sainte Genevieve, MO, is dedicated to providing essential assistance to individuals with Prader-Willi syndrome and their families. We understand the challenges faced at the time of diagnosis, which is why our team is committed to offering accurate information and compassionate support tailored to your needs. Our comprehensive program includes parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can easily connect with our local chapter through the online chapter locator or reach out via email to join our supportive Facebook groups.