Family Support

Based in Saint Clair, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Understanding the unique challenges faced at the time of diagnosis, our Family Support team offers vital resources, including accurate information, comprehensive parental mentoring, and specialized nutritional education and meal planning. We also provide guidance on behavior management and assist families with navigating Medicaid, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) appeal processes. To access support or connect with others, families can reach out through our local PWSA chapter or join one of our Facebook Support Groups.