Family Support

Located in Park Hills, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support to individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team is here to offer accurate information and compassionate assistance right from the moment of diagnosis. We provide a comprehensive array of services including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families with navigating the complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking assistance, please reach out to your local PWSA chapter through our online chapter locator or email us to join one of our supportive Facebook groups.