Family Support

Located in Ozark, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome, along with their families and care providers, by offering essential and compassionate support. At PWSA, we understand the challenges faced upon receiving a diagnosis, which is why our Family Support team is committed to providing accurate information and a comprehensive range of services. From parent mentoring and nutritional education to assistance with behavior management and navigating Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI), we are here to help every step of the way. For support, families can reach out to their local PWSA chapter through our online chapter locator or connect with our community via email to join our supportive Facebook Groups.