Family Support

Based in O'Fallon, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals living with Prader-Willi syndrome and their families. We understand the challenges faced at the time of diagnosis, which is why our Family Support team is committed to offering accurate information and compassionate assistance. Our program includes parent mentoring, nutritional education and meal planning, behavior management support, and guidance through Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) processes. For support, families can connect with their local PWSA chapter using our online locator or by reaching out via email to join one of our dedicated Facebook Support Groups.