Family Support

In Mexico, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to delivering accurate information and comprehensive assistance right from the moment of diagnosis. We offer a variety of vital services, including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the often complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking help, our local PWSA chapter is accessible via an online chapter locator, and families can connect with our supportive community through Facebook Support Groups. Together, we strive to enhance the lives of those affected by Prader-Willi syndrome, ensuring no family has to face this journey alone.