Family Support

Located in Lebanon, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is a vital resource, offering accurate information and comprehensive assistance right from the moment of diagnosis. We provide a range of services, including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Our mission is to empower families with the resources they need to navigate the challenges of Prader-Willi syndrome and enhance their quality of life. To connect with us or to join one of our supportive Facebook groups, please reach out through our local PWSA chapter or via email.