Family Support

Located in Lake Saint Louis, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering families affected by Prader-Willi syndrome through a variety of essential support services. Our Family Support team is here to provide accurate information and tailored assistance from the moment of diagnosis, ensuring families have the resources they need to navigate this challenging condition. We offer parent mentoring, nutritional education, meal planning, and behavior management strategies, alongside guidance for Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) appeals. For personalized support, families can connect with their local PWSA chapter via our online locator, or join our Facebook Support Groups to engage with a community that truly understands their journey.