Family Support

Located in Kearney, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing much-needed support to individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. With a compassionate Family Support team, PWSA offers vital resources such as accurate information, parent mentoring, nutritional education, meal planning guidance, and behavior management support. We understand that navigating the complexities of healthcare can be challenging, which is why we also assist families with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community and access these essential services, families can reach out through our online chapter locator or by joining one of our Facebook Support Groups.