Family Support

In Jefferson City, MO, the Prader-Willi Syndrome Association (PWSA) stands as a beacon of support for individuals with Prader-Willi syndrome and their families. Our Family Support team is dedicated to providing essential resources and guidance, offering accurate information and comprehensive assistance from the moment of diagnosis. We specialize in parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we aid families in navigating the complexities of application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our services, families are encouraged to connect with their local PWSA chapter using the online chapter locator or by reaching out via email to join one of our Facebook Support Groups.