Family Support

Located in Imperial, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals with Prader-Willi syndrome and their families. Our Family Support team offers accurate information and comprehensive assistance tailored to the needs of each family at the time of diagnosis. We provide a range of essential services, including personalized parent mentoring, nutritional education, meal planning, and behavioral management support. Additionally, we assist families in navigating the complexities of application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can connect with their local PWSA chapter through our online chapter locator or reach out via email to join our Facebook Support Groups for ongoing community engagement.