Family Support

Located in Hannibal, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer reliable information and compassionate guidance during the challenging times of diagnosis and beyond. We provide a variety of services, including parent mentoring, nutritional education and meal planning, behavior management assistance, and help with navigating applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support resources, families can reach out through the local PWSA chapter via our online chapter locator or connect through our Facebook Support Groups.