Family Support

Located in Cameron, MO, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome, along with their families and caregivers, through vital support and resources. Our Family Support team is committed to providing reliable information and compassionate assistance during the challenging moments surrounding a diagnosis. We offer a range of services including parent mentoring, nutritional education and meal planning, behavior management strategies, and guidance with Medicaid, insurance appeals, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications. For immediate help, families can connect with our local chapters or join support groups through our online platforms. Together, we strive to enhance the quality of life for those affected by Prader-Willi syndrome.