Family Support

Based in Temperance, MI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and comprehensive resources right when families need it most. We facilitate parent mentoring, nutritional education, and meal planning, as well as behavior management support to empower families in their daily journey. Additionally, we assist with the application and appeal processes for vital services such as Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For immediate support, families can connect with their local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups, ensuring that no one has to navigate this path alone.