Family Support

Located in Davison, MI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing invaluable support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to delivering accurate information and a wealth of resources at the crucial moments of diagnosis. We offer a range of services including personalized support, parent mentoring, nutritional education, meal planning, and behavior management assistance. Additionally, we guide families through the complexities of applying for and appealing Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For tailored support, families can connect with their local PWSA chapter through our online chapter locator or join our vibrant Facebook Support Groups by reaching out via email.