Family Support

In Benton Harbor, MI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. Our Family Support team is a lifeline for families navigating the challenges that arise at diagnosis, offering accurate information and comprehensive assistance tailored to their unique needs. We provide valuable resources such as parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families with the application and appeal processes for Medicaid, health insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support services, individuals can utilize our online chapter locator or reach out via email to join our welcoming Facebook Support Groups.