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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
South Portland, ME US
In South Portland, ME, the Prader-Willi Syndrome Association (PWSA) stands as a beacon of support for individuals diagnosed with Prader-Willi syndrome and their families. Our dedicated Family Support team is here to provide essential resources, reliable information, and compassionate guidance at every step of the journey, especially during the crucial time of diagnosis. We offer a variety of services including parent mentoring, nutritional education with meal planning, behavior management strategies, and assistance navigating the application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with us through their local PWSA chapter or join one of our supportive Facebook groups to access the help they need.

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