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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
South Paris, ME US
In South Paris, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through compassionate and comprehensive support. Our Family Support team offers critical resources including accurate information at the time of diagnosis, parent mentoring, and guidance on nutritional education and meal planning tailored to the unique needs of each family. We also provide behavior management support and assist with the complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families seeking assistance to connect with their local PWSA chapter for support, or to reach out via email to join one of our Facebook Support Groups.

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