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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Poland, ME US
Based in Poland, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals and families affected by Prader-Willi syndrome. Our Family Support team is here to provide essential resources, accurate information, and compassionate guidance from the moment of diagnosis. With a focus on practical assistance, we offer parent mentoring, nutritional education and meal planning, and behavior management support to help navigate daily challenges. We also assist families with Medicaid applications, insurance coverage, and support for Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). To connect with us and access support, reach out to your local PWSA chapter through the online locator or join our supportive Facebook groups. We are committed to walking alongside families on their journey, ensuring no one has to face this diagnosis alone.

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