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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Orono, ME US
Family Support in Orono, ME, is dedicated to serving those affected by Prader-Willi syndrome. Our mission is to provide compassionate, accurate information and comprehensive support for individuals, their families, and care providers at crucial moments in their journey. We offer valuable resources, including expert parent mentoring, nutritional education, meal planning guidance, and behavior management strategies. Additionally, we assist families in navigating the often complex application and appeal processes for essential services like Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We welcome families to reach out for support through our local chapter, or connect with us via email to join our Facebook Support Groups.

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