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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Norridgewock, ME US
Located in Norridgewock, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families. We understand the challenges that arise at the time of a diagnosis, and our Family Support team is here to provide timely information and caring assistance. Our services encompass a wide range of support including parent mentoring, nutritional education, meal planning, behavior management strategies, and guidance through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to connect with their local PWSA chapter through our online chapter locator or to reach out via email to join our supportive Facebook groups, ensuring that no one navigates this journey alone.

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