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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Holden, ME US
Family Support in Holden, ME, is dedicated to assisting individuals and families affected by Prader-Willi syndrome. Our mission is to empower families at the critical moments of diagnosis by providing accurate information, compassionate support, and expert resources tailored to their needs. Our Family Support team offers invaluable services including parent mentoring, nutritional education, meal planning, and behavior management guidance. We also help families navigate the often complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can connect with their local PWSA chapter through our online chapter locator or reach out via email to join our supportive Facebook communities.

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