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Family Support

Family Support

Prader-Willi Syndrome Association (PWSA)
Ellsworth, ME US
In Ellsworth, ME, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals with Prader-Willi syndrome and their families. Understanding the challenges that arise upon diagnosis, our Family Support team offers reliable information and a compassionate network of resources. We focus on empowering families through parent mentoring, nutritional education, and meal planning guidance, alongside behavior management support. PWSA also assists with navigating the complexities of Medicaid applications, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI), ensuring families receive the assistance they need. To connect with our support services, families can locate their nearest PWSA chapter online or reach out via email to join one of our Facebook Support Groups.

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