Family Support

In Sykesville, MD, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through compassionate and comprehensive support. Our Family Support team is here to provide crucial information and assistance at every step of the journey, from the moment of diagnosis. Families can rely on us for parent mentoring, nutritional education, and effective meal planning, as well as behavior management support tailored to individual needs. We also assist with navigating the complexities of Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. For guidance and connection with our community, families are encouraged to reach out through the chapter locator or by joining our supportive Facebook groups.