Family Support

Located in North East, MD, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support and resources for individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team is committed to providing accurate information and comprehensive assistance right from the moment of diagnosis. We offer a range of essential services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community, families can reach out through the local PWSA chapter using our online chapter locator or via email to join one of our Facebook Support Groups.