Family Support

Located in Manchester, MD, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to offering accurate information and comprehensive assistance right from the moment of diagnosis. We focus on equipping families with essential resources, including personalized parent mentoring, nutritional education, and meal planning guidance, as well as behavior management support. Additionally, we assist with navigating the application and appeal processes for crucial services such as Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, we encourage families to reach out through our online chapter locator or connect via email to join one of our Facebook Support Groups, ensuring no family has to face this journey alone.