Family Support

Located in Joppa, MD, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing compassionate support and resources for individuals diagnosed with Prader-Willi syndrome and their families. Understanding the challenges that come with this diagnosis, our Family Support team offers essential information tailored to each family's needs. We provide parent mentoring, nutritional education, meal planning guidance, and behavior management support. Additionally, we assist families in navigating the application and appeal processes for vital services such as Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our supportive community, families can utilize our online chapter locator or reach out via email to join our Facebook Support Groups.