Family Support

Located in Hampstead, MD, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals living with Prader-Willi syndrome, along with their families and caregivers. The Family Support team at PWSA offers vital resources and specialized assistance to help families navigate the complexities of this diagnosis. We provide accurate information, parent mentoring, nutritional education, and meal planning, along with behavior management strategies. Our team also supports families through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families can find their local PWSA chapter through our chapter locator or reach out via email to join our supportive community on Facebook.